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With the support of the Portuguese Directorate-General of Health between, 2009 and 2012, and the National Institute for Rehabilitation, I.P. in 2013 and 2014, Linha Rara is the first national helpline for rare diseases as a group, representing a unique and innovative response to the needs of those who are directly or indirectly affected by these conditions. Linha Rara’s mission can be summarized in four pillars: listen, inform, advise and guide, living up to its slogan “Rare Diseases exist... don’t get resigned, get informed!”.

Member of the European Network of Rare Disease Help Lines (established by EURORDIS – European Organisation for Rare Diseases), Linha Rara has received more than 9 000 information and support requests from more than 20 countries and it was distinguished twice as the helpline with more requests in relation to the country’s population, according to Caller Profile Analysis.

In 2014, under the scope of the project “Marcos' Centre - Information and Training”, with the support of the Programa Cidadania Ativa, promoted by European Economic Area Financial Mechanism (EEA Grants), Linha Rara was able to reach a wider audience by providing a bilingual website (Portuguese and English).

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