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About Linha Rara

About Linha Rara

In 2002, a group of parents got together to give a voice to a "rare language", previously forgotten. As a result, Raríssimas – the National Association of Mental and Rare Diseases was born.

Since then, the number of members, friends, personalities and institutions who support our Association’s cause has grown each year, both nationally and internationally. Today, Raríssimas is a reference in the area of rare diseases in Portugal.

Providing support to “rare people with rare needs”, Raríssimas has sought to respond to the requests that come in every day, from patients with rare diseases, families and friends, healthcare professionals and social workers, students, researchers and the curious.

In order to consolidate the development and professionalization of its information and support service, Raríssimas launched Linha Rara in 2009, with the support of the Directorate-General of Health.

More information about Raríssimas can be found at www.rarissimas.pt.

 

TEAM

Linha Rara’s team is highly qualified, with an exceptional ethical conduct, as well as previous experience in carrying out activities with patient associations or other non-profit institutions.

The Team assures the entire Linha Rara information platform, in close collaboration with professionals from various fields of study, including: Medicine, Law, Clinical Psychology and Social Work.

 
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